Thursday, December 15, 2011

CFS or ME?
I have a lot of friends on my Facebook page who suffer from the disease that has been known for so many years as Chronic Fatigue Syndrome. It makes it sound like people are just tired, which is so far from the truth.

An international study, which came out in July, is finally a consensus on the definition of Myalgic Encephalomyelitis and how it should have its rightful acknowledgment as a true illness with definite symptoms. With a definitive set of symptoms that can be diagnosed, there can now be criteria for patients to qualify for research studies, possibly netting eventual effective treatment and possibly even a cure.

After running down the symptom list, it appears that I can give myself this new "definition" of whatever it is that I am living with on a daily basis. Hopefully, with a new definition and all of these experts agreeing that this is a neurological disorder that changes the central nervous system, we will, as a group, be taken more seriously by our doctors.

Plus, doesn't it help to have an actual medical name for whatever this is? It legitimizes the illness and hopefully begins to end the stigma of "Chronic Fatigue Syndrome." Hopefully.

If you would like to read the article, you can find it here.

I wish everyone in the Fibromyalgia and ME communities a very Merry Christmas and hope that the coming year brings us better treatments, better acceptance by the medical community, and better understanding of what living with this chronic illness really means.

No comments:

Post a Comment

I'd love to hear from you. Feel free to tag back to your blog in the body of your message. Comments are my favorite!